Coping with ALS // Artists Jon Imber and Jill Hoy

 
tumblr_n6vo1og6OH1txa27ro1_1280.jpg
tumblr_n6vo1og6OH1txa27ro3_1280.jpg
tumblr_n6vo1og6OH1txa27ro2_1280.jpg
tumblr_n6vo1og6OH1txa27ro4_1280.jpg

“I have found that I am changing continually, but as long as I have continued to paint, I have remained my own self.” - Jon Imber

In late winter, I photographed artists Jon Imber and Jill Hoy. In 2012, Jon was diagnosed with ALS, a progressive disease that affects the muscles that control the body: including movement and speech. Throughout his diagnosis, he painted with leg and hand braces and an assistant, to creating complex and vibrant portraits. He continued to paint until just days before he passed away in April. 

It was an honor to photograph Imber, to witness Imber and his wife Jill Hoy painting side-by-side, and to see the way they loved one another. It is something I will never forget.

Read Lisa Belisle’s article about them here.